Cystic fibrosis is a disease that is estimated to affect more than 2,500 inhabitants in Spain. It is something chronic, hereditary and it is also degenerative.
The cystic fibrosis It is a disease that is estimated to affect more than 2,500 inhabitants It is chronic, hereditary and is also degenerative, mainly affecting the lungs and digestive system.
It affects both men and women in one case in 5,000 births. While one in every 35 inhabitants are healthy carriers of the disease. This disease results in a thickening and decrease in the content of water, sodium and chlorine in the secretions that causes obstruction of the channels that transport these secretions, and allows this stagnation to produce infections and inflammation that destroy areas of the lung, liver and pancreas. , as well as reproductive problems.
This thickening of the mucous membranes makes it easier the accumulation of bacteria or small organisms that enter the lungs and cause respiratory infections.
The symptoms The most characteristic features of this disease are the salty taste of the skin, frequent respiratory problems, lack and loss of weight, digestive and reproductive problems.
It is very important to continue working to provide hospitals with Cystic Fibrosis Units reference where the disease is treated in a multidisciplinary manner, focusing on the multiple organs that are affected by cystic fibrosis.
Patients must be offered comprehensive and multidisciplinary care, as a right of all people who are affected in order to offer them a greater quality of life.
The creation of isolated spaces with the maximum guarantees, to avoid cross infections, is essential and its immediacy is essential as a form of prevention and to be able to reach adulthood in the best possible physical conditions to receive the new treatments that are already appearing. .
There is no point in having cutting-edge medications if we do not start with something as essential as early diagnosis, without which the future of people with cystic fibrosis will be much more delicate despite the new treatments.
Self-esteem
Psychological interventions focus on emotional and social adaptations, quality of life and its management since this type of disease usually leads to neurosis, depression and anxiety. According to experts, people who suffer from cystic fibrosis present a series of psychological and emotional symptoms, such as the fear of suffering from a drowning situation without being able to do anything to avoid it or the feeling of uncertainty about the future.
There are many studies that show that parents of children who suffer from chronic illnesses have a greater tendency to show high stress levels
Attention should be paid to the emotional symptoms of idiopathic pulmonary fibrosis, both in the patient themselves and in their family members.
Sexuality in cystic fibrosis
Many people with cystic fibrosis often have a active sexual life, this could surprise many people who are used to thinking that they are limited or asexual people and this is very far from reality. People with cystic fibrosis have made it very clear that their sexual life and relationships can be the same or better in many cases because they are people who are very focused on their daily lives, this leads them to be more aware and enjoy themselves more intensely. They are focused on the here and now.
It is also true that cystic fibrosis can present difficulties in sexual life. Breathing problems could occur in certain postures that put pressure on the lungs and cause respiratory problems Some people with breathing difficulties need to be hooked up to an oxygen machine, which can make it difficult to move in bed.
Fear for a future
Due to the development of the disease, the patient is affected physically but also mentally and emotionally. The person usually enters rumination, has an idea that revolves around a dark future, with negative ideas about the evolution of the disease and its side effects. The prevention and diagnosis of future emotional disorders, depressive states or anxiety should begin to be treated from the moment the disease is detected if possible. It has been discovered that people with cystic fibrosis who carry out psychotherapeutic work behind them have a tendency to experience the disease from a more positive point of view. They have managed to adapt to their own psychological and emotional environment.
